Challenges in Rare Diseases Treatment
A basic challenge in diagnosing rare diseases is access to adequate patient data; and in this age of social media. Patients are hard to find, Information is sent, and then there are problems due to visible privacy issues and data ownership. Lack of diagnosis is the most difficult area for families to be in, affecting health, survival, well-being, and, more often, the patient's personality. However most of the rare diseases have no treatment and still many of them losing their as they couldn’t find accurate diagnosis for some kind of rare diseases.
- Accurate Diagnosis
- Endpoint Selection
- Patient Availability and Recruitment
- Commercialization
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