6th International Conference on

Rare Diseases & Orphan Drug

Theme: Challenges & opportunities in elimination of Rare diseases & orphan drug development

OCM for Rare Diseases Meet Series Conferences

Organizing Committee

OCM Member

Mohamed Abozeid

Medical Oncologist
Suez Canal University Hospital
Egypt

Biography Research Interest

OCM Member

Dr. Rafik Abdulal

Consultant Thoracic&Breast Surgeon
Latakia National Hospital(L.N.H)
Syria

Biography Research Interest

OCM Member

Jeff Leider

President
Let Them Be Little X2 Foundation S.G.E
New Jersey

Biography Research Interest

OCM Member

Dr Shrutti Dhar

Country Brand Lead
Rare Diseases India
India

Biography Research Interest

OCM Member

Dr.Mojtaba Mafi

Medical Doctor/ Physician
Tehran university
Iran

Biography Research Interest

OCM Member

Leila Macedo

Founder member of the International Federation of Biosafety Associations
Ministry of Health
Brazil

Biography Research Interest

OCM Member

DR. NEUSA O.V.T LOPES

President of the Multi Drug Resistant Tuberculosis
Ministry of Health, East Timor
Timor

Biography Research Interest

OCM Member

Qais Abu Ali

Medical director
Ultragenyx pharmaceutical
USA

Biography Research Interest

OCM Member

Samer Ellaham

Chief Quality Officer
Sheikh Khalifa Medical City
UAE

Biography Research Interest

OCM Member

Yuvuz Selim SILAY

Chairman ICG
Istanbul Consulting Group
Turkey

Biography Research Interest

OCM Member

Timothy Low

Head of Medical Affairs, Asia Pacific, Shire
Board Director, Farrer Park Hospital
Singapore

Biography Research Interest

OCM Member

Stef Stienstra

Dutch Armed Forces
Royal Dutch Navy
The Netherlands

Biography Research Interest

OCM Member

DR SAMRAT A SHAH

CONSULTANT PHYSICIAN
MEDIHEAL GROUP OF HOSPITAL
KENYA

Biography Research Interest

OCM Member

Bryan Gutierrez

DHA Pharmacist
Al Zahra Private Hospital
Dubai

Biography Research Interest

Organizing Committee - Rare Diseases Congress-2018

OCM Member

Tiziana Greggi

Head
Rizzoli Orthopaedic Institute
Italy

Biography Research Interest

OCM Member

Laxminarayan Bhat

President & CEO
Reviva Pharmaceuticals
USA

Biography Research Interest

OCM Member

Dr. med. Bernhard R. Ruf

Head
St. Georg Hospital
Germany

Biography Research Interest

OCM Member

Stef Stienstra

Dutch Armed Forces
Royal Dutch Navy
The Netherlands

Biography Research Interest

OCM Member

Reza Nassiri

Assistant Dean
Michigan State University
USA

Biography Research Interest

Organizing Committee - Rare Diseases Congress 2017

OCM Member

Nadia Annitia Ameen


Yale University School of Medicine
USA

Biography Research Interest

OCM Member

Abdulaziz Aldawood


King Saud Bin Abdulaziz University
Saudi Arabia

Biography Research Interest

OCM Member

Weida Tong


Division of Bioinformatics and Biostatistics, FDA
USA

Biography Research Interest

OCM Member

Joseph Ndung u


FIND’s Neglected Tropical Diseases
Switzerland

Biography Research Interest

Organizing Committee - Rare Diseases 2016

OCM Member

Daniel Cohen

Chairman
Pharnext
France

Biography Research Interest

OCM Member

Serge BRAUN

Scientific Director
AFMTelethon
France

Biography Research Interest

OCM Member

Stephen P. Arneric

Executive Director
Critical Path Institute
USA

Biography Research Interest

OCM Member

Stephen B. Shrewsbury

Executive VP, Development & CMO
Fortuna Fix
USA

Biography Research Interest

OCM Member

Amrik Sahota

Professor
Rutgers University
USA

Biography Research Interest

OCM Member

Pat Furlong

Founding President and Chief Executive Officer
Parent Project Muscular Dystrophy
USA

Biography Research Interest

OCM Member

Annemieke Aartsma-Rus

Professor
Leiden University Medical Center
The Netherlands

Biography Research Interest