Rare Diseases & Orphan Drug

As  a rare disease patient and Advocate she is on the know on the challenges facing the rare community and also what can be done to impact the positive change that is highly important for the health professionals, the rare disease patients and their care givers in our communities. The great vision and immense passion to support others is what drove her to start the non profit organisation. The Rare and Chronic Diseases Foundation Kenya.  She's on the forefront raising awareness on rare diseases of which many are debilitating and life threatening also leading to invisible disabilities which is a great challenge in Kenya Africa and the world as a whole. She's been on media and also trying to involve the health professionals in this great movement towards eradicating and proper management of rare diseases. She's a diploma holder in pharmacy and clinical psychology. Been a pharmaceutical entrepreneur till 2017 when she couldn't do it anymore due to her health condition. No life should be lost due to an economical status. 

A health world is a wealth world.